Contacting People

Groups

There are several hypotonia email lists / message boards:

Adults

I would like to contact adults who have (or know adults who have) Nemaline Myopathy or Benign Congenital Hypotonia, as well as any professionals who have interests in these diagnoses.

My contact is


The Benign Congenital Hypotonia Site
Contact People
2010-Aug-27