Contacting People

Parents

If you would like to talk to parents of hypotonic children, two members of the Hypotonia Hope group have volunteered to be listed here:

• Anne can be reached via .
• Kenya can be reached via .

Groups

There are several hypotonia email lists / message boards:

• Hypotonia Hope email list / Yahoo group
• "Our Special Needs Children" email list / Yahoo group
• Hypotonia Message Board at parentsplace.com

Adults

I would like to contact adults who have (or know adults who have) Nemaline Myopathy or Benign Congenital Hypotonia, as well as any professionals who have interests in these diagnoses.

My contact is