Hypotonia Related Books and Articles

(Rough draft of list)

• Raising a Child with a Neuromuscular Disorder
  A Guide for Parents, Grandparents, Friends, and Professionals
  By Charlotte E. Thompson, M.D.
  Publishing date: 1999
  Oxford University Press
  ISBN: 0-19-512843-5
  This is a very good book full of practical information, particularly in dealing with hospitals, doctors, insurance companies, and schools, as well as detailed information about dealing with the various neuromuscular disorders. It doesn't cover "hypotonia" directly.
  - Marty
  
  
• The Hypotonic Child
  By Regi Boehme 1990
  Published by Therapy Skill Builders, a division of Communication Skill Builders
  3830 E. Bellevue, PO Box 42050
  Tucson Arizona 85733
  ISBN 0-88450-574-X
  Cat No 4220
  Great for pre-walkers. Has explanations of the hypotonia issues and ideas for exercises. A bit technical as it's aimed at physiotherapists, but has pictures too.
  
  
• Congenital hypotonia is not benign. Early recognition and intervention is key to recovery.
  By Shannon Munro Cohen, RNC
  MCN American Journal of Maternal Child Nursing 1998 Mar: 23(2) 93-98.
  
  
• The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction
  By Carol Stock Kranowitz
  Format: Paperback, 1st ed., 352pp.
  ISBN: 0399523863
  Publisher: Berkley Publishing Group
  Pub. Date: February 1998
  This book is not about hypotonia, but many of the members of the hypotonia list are also dealing with sensory integration problems, for which this is a very good book.
  
  
• Changed by a Child: Companion Notes for Parents of a Child with a Disability
  By Barbara Gill
  NY, Doubleday, 1997
  It contains short reflections/meditations written by parents who have children with special needs. They voice all of our concerns, often quite poetically.
  - Anne
  
  
• What it's like to be me
  Edited by Helen Exley
  (C) 1981 Exley Publications Ltd.
  Published in 1984, 1992 by Friendship Press Inc.
  475 Riverside Drive, Room 772
  New York, NY 10115
  I can't praise this book enough! It contains over 120 pages of brutally honest stories, essays, and other writings by children of various ages, disabilities, and backgrounds. Every page contains illustrations done by the children. An excellent aid to understanding "What it's like".
  - Marty
  
  
• If Your Child Is Handicapped
  Edited by William C. Kvaraceus & E. Nelson Hayes
  F. Porter Sargent Publisher, 1969
  11 Beacon Street
  Boston, MA 02108
  Library of Congress card catalog # 68-59137
  I can't wholeheartedly recommend this book due to some of its obsolete attitudes toward the disabled, but given when it was written, it is a very good and uplifting book. It contains about fifty essays by parents of children with a wide range of disabilities.
  - Marty
  
  
• The Challenging Child
  By Stanley I. Greenspan, M.D. with Jacqueline Salmon
  ISBN 0-201-62647-0
  ISBN 0-201-44193-4 (pbk.)
  A Merloyd Lawrence Book
  Addison-Wesley Publishing Company, Inc.
  
  
• The Child with Special Needs: Encouraging Intellectual and Emotional Growth
  By Stanley I. Greenspan M.D. and Serena Wieder, Ph.D with Robin Simons
  ISBN 0-201-40726-4
  This is a really good book! - Doris
  
  
• The Special Child: A Source Book for Parents of Children with Developmental Disabilities
  Second Edition
  By Siegfried M. Pueschel,M.D.,Ph.D.,M.P.H., Patricia S. Scola,M.D.,M.P.H., Leslie E. Weidenman,Ph.D., James C. Bernier A.C.S.W.
  ISBN 1-55766-167-7
  Paul H. Brookes Publishing Co.
  
  
• Sensory Integration and the Child
  By A. Jean Ayres, Ph.D
  Western Psychological Services
  ISBN: 0-87424-158-8
  13th printing - 3/98
  
  
• The Floppy Infant By Dr. Victor Dubowitz
  
  
• Neuromuscular Disorders in Childhood by Dr. Michael Brooke