Hypotonia Related Books and Articles
(Rough draft of list)
This is a list of books which members of the e-mail discussion list
have found useful. They aren't necessarilly about hypotonia, and
no official endorsement should be infered.
Raising a Child with a Neuromuscular Disorder
A Guide for Parents, Grandparents, Friends, and Professionals
By Charlotte E. Thompson, M.D.
Publishing date: 1999
Oxford University Press
This is a very good book full of practical information, particularly in dealing
with hospitals, doctors, insurance companies, and schools, as well as detailed
information about dealing with the various neuromuscular disorders. It
doesn't cover "hypotonia" directly.
The Hypotonic Child
By Regi Boehme 1990
Published by Therapy Skill Builders, a division of Communication Skill Builders
3830 E. Bellevue, PO Box 42050
Tucson Arizona 85733
Cat No 4220
Great for pre-walkers. Has explanations of the hypotonia issues and ideas
for exercises. A bit technical as it's aimed at physiotherapists, but
has pictures too.
Congenital hypotonia is not benign. Early recognition and intervention is key to recovery.
By Shannon Munro Cohen, RNC
MCN American Journal of Maternal Child Nursing 1998 Mar: 23(2) 93-98.
The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction
By Carol Stock Kranowitz
Format: Paperback, 1st ed., 352pp.
Publisher: Berkley Publishing Group
Pub. Date: February 1998
This book is not about hypotonia, but many of the members of the hypotonia list are also dealing
with sensory integration problems, for which this is a very good book.
Changed by a Child: Companion Notes for Parents of a Child with a
By Barbara Gill
NY, Doubleday, 1997
It contains short reflections/meditations written by parents who have children with
special needs. They voice all of our concerns, often quite poetically.
What it's like to be me
Edited by Helen Exley
(C) 1981 Exley Publications Ltd.
Published in 1984, 1992 by Friendship Press Inc.
475 Riverside Drive, Room 772
New York, NY 10115
I can't praise this book enough! It contains over 120 pages of
brutally honest stories, essays, and other writings by children of
various ages, disabilities, and backgrounds. Every page contains
illustrations done by the children. An excellent aid to understanding
"What it's like".
If Your Child Is Handicapped
Edited by William C. Kvaraceus & E. Nelson Hayes
F. Porter Sargent Publisher, 1969
11 Beacon Street
Boston, MA 02108
Library of Congress card catalog # 68-59137
I can't wholeheartedly recommend this book due to some of its obsolete
attitudes toward the disabled, but given when it was written, it is a
very good and uplifting book. It contains about fifty essays by parents of
children with a wide range of disabilities.
The Challenging Child
By Stanley I. Greenspan, M.D. with Jacqueline Salmon
ISBN 0-201-44193-4 (pbk.)
A Merloyd Lawrence Book
Addison-Wesley Publishing Company, Inc.
The Child with Special Needs:
Encouraging Intellectual and Emotional Growth
By Stanley I. Greenspan M.D. and Serena Wieder, Ph.D with Robin Simons
This is a really good book! - Doris
The Special Child:
A Source Book for Parents of Children with Developmental Disabilities
By Siegfried M. Pueschel,M.D.,Ph.D.,M.P.H., Patricia S. Scola,M.D.,M.P.H.,
Leslie E. Weidenman,Ph.D., James C. Bernier A.C.S.W.
Paul H. Brookes Publishing Co.
Sensory Integration and the Child
By A. Jean Ayres, Ph.D
Western Psychological Services
13th printing - 3/98
- The Floppy Infant By Dr. Victor Dubowitz
- Neuromuscular Disorders in Childhood by Dr. Michael Brooke
- The Underground History of American Education by John Taylor Gatto
The best book I have ever read about the schooling systems of the United States. There are reasons why an intelligent, slightly physicallly disabled person like me had such a traumatic experience of school, and this book reveals many of the institutional contributions to this.