Welcome to the Rainbow Family Community!!
We are delighted that you have joined us and hope that you find what you are looking for - information, friendship and support.
The Trisomy Listserv is a "family" of parents, caregivers, health professionals, friends and others whose lives have been touched by the diagnosis of pone of the rarer chromosomal anomalies such as a trisomy or other related disorders. While Trisomy 18 (Edward's Syndrome) and Trisomy 13 (Patau's Syndrome) families would seem to comprise the greatest numbers on the list, many other "flavours" of chromosomal anomalies (meaning the number of the chromosome and type of anomaly) are represented and very much a part of our family.
At present we comprise over 100 families, from all over the world, on the main trisomy list.
Like any family we do have a few list "rules" that help everyone enjoy a friendly and helpful forum. The rules are really very simple.
RESPECT
This is the most important rule - we ask that you remember that each individual has the right to make their own choices in life, regardless of whether we agree or disagree with those choices.
We also ask that you do not engage in flaming, flame baiting and flame wars.
Use a descriptive subject line
And keep the same subject line for the thread of the conversation. If the topic of a thread changes please change the subject line.
Use a tag or signature line
This is 2 or 3 lines at the end of a post which describes who you are and perhaps where you live. With over 100 families on the list it can get very confusing as to who is who. But please keep it brief.
Use quotes
Please use quotes when replying to a post, so that people can know what you are responding to. But please do not include the whole of a previous post - keep it brief and to the point. A general rule is to include no more than 2 or 3 lines.
Set your mail to plain text
The list cannot process mail that uses HTML or.dat files. Your mail needs to be sent in plain text.
Respect Copyrights
Please do not republish on the list written material without the owners consent and/or attribution.
Don't attach files to your mails
Please don't attach files of any type to your mails, they cannot be processed by the list program. If you want to send pictures to others on the list either e-mail them separately or you can send them to
Karen who will place them on the web for you.Don't send virus warnings to the list
Most virus warnings that you receive on the internet are hoaxes. If you think that you are aware of a legitimate virus warning forward it first to the listowner who will then post it to the list if it's applicable. If you are unsure about the validity of a particular virus warning a good place to check is
The Computer Incident Advisory Capability or Symantec.Do not send chain letters to the list
Chain letters are not appropriate to send to the list - most are hoiaxes or urban myths. To check the validity a good site is
Snopes Urban Legend Reference Pages.Do not forward private e-mails to the list
Do not forward private e-mails to the list without the consent of the original writer. It is a breach of netiquette to forward private e-mails without the authors express consent.
Do not send personal details to the list
This includes addresses and phone numbers. It is a dangerous practice and a good thing to remember with any e-mail. The list mails are archived and any personal details posted to the list will be freely available to anyone. If someone requests personal information and you wish to share it - do so privately in a personal mail.
|
Home | Trisomy List | Wings List | Siblings List ||
Message Boards | Chats | Rainbow Angels Tribute | Rainbow Families ||
Candles of Love | The Rock | Where are We? | Links ||
Other Lists | Trisomy Web Ring | Why Rainbows? ||
What is a Trisomy? |Visitors Since 18th May 1999
This page was last updated on the 12th February 2000